Wow! It's an update!

Well, just a quick one. And I also wanted to let you know that I really don't use this blog anymore. I was trying to keep up with this one and another one with just our everyday lives but doing both just seemed silly. I have had this blog for 3 years and I hate to not post here, but I just don't have the time. But I can't bring myself to shut it down for some reason. So here it will sit. For now, if you'd like the link to my new blog, just email me. I'll be happy to give you the link but I don't want to post it here. You can email me at Kris_CPST at cox dot net

Ok, now for the update. Hayleigh just turned 8! EIGHT! Can you believe that? She's having a Hannah Montana birthday party in 2 weeks and she is very excited about it. She's doing very well in school but is counting the days until summer vacation. Only 26 more to go!

On April 1st she had another heart cath. The problem could not be fixed this time (they didn't find anything fixable) so we are dealing with low oxygen (not dangerously low, though) and lots of fatigue and we're still not sure why. A day at school makes her come home and crash on the couch. This is another reason we are looking forward to summer vacation.

She is doing well on the insulin pump. We are handling her Celiac much better than before (I no longer cry while grocery shopping). Everything is going ok for now.

Jordan was diagnosed with ADHD after a lot of trouble the past few years. He started on Vyvanse 2 weeks ago and we are already seeing wonderful results. I received 2 emails from his teachers last week and for the first time ever they were positive emails! I was told he is doing well in school, helping others, being polite and is able to focus much better than before. At first we weren't sure that medication was the way we wanted to go. But after this? We are sure we made the right decision.

Kailyn and Allie are doing great as well. Kailyn is done with preschool and chose not to return next year. She loves hanging out with mom and we make the most of our days by going to playgroups, storytime and such. She's having a blast. Allie is entering the terrible two's. She's definitely a handful but a super cute one, so that's ok. lol

Scott is super busy working and going to school. He is working on his Masters and will be finished in 16 months. We both can't wait but it will all be worth it in the end and I am very proud of him.

Well, that's about it for now. If you care to keep up with us, email me for the new blog link. I hope everyone is well! Thanks for stopping by and God bless!

It's been forever!

Like I said before, no news is good news, right?

Things have been going very well lately! Hayleigh's doing well in school. She has missed a little but not as much as her first year. She absolutely LOVES it and even when she is feeling really bad she insists on going. Sometimes she makes it the whole day and sometimes not but she tries. She amazes me.

Her last A1C was not good at all. She has been sick off and on and with school starting and trying to get things all worked out there and her outgrowing her basals, her BG has just been all over the place. After some adjusting, though I think we are on the right track. We are doing basal testing tonight to see where she spikes, though. Hopefully that will help us figure out some things.

We are going to go in to see her Cardiologist soon. It may be me worrying too much but her fingernails and lips are looking bluish again. It could be a sign of another AVM or the same one just getting bigger. It could be me just being crazy too, though. I hope that's all it is. We'll find out soon, though. It's been 2 years since her last cath/embolization so it wouldn't surprise me at all if she was coming up on another one soon.

Well, I have a lot more to write but I will spread it out a little over a few posts. On that note I will leave you with a few pics from our walk last weekend. It was amazing and it just gets better every year!

Check out our shirts. Thanks again Girl. You are the best!


Team "Hiking for Hayleigh" Nana, my mom, me, Scott, Aaron, Greg, Ashley, Jordan, Kailyn, Allison and Hayleigh.





The back of our shirts. Hayleigh's is a bit different. :o)





Hayleigh standing under her photo on the picture wall.





Our team at the finish line. 3 miles was not so bad!

Vote to benefit JDRF

I just got this email from our local JDRF Chapter. Please vote as many times as you can and PLEASE pass this on. JDRF would love to receive a $30,00 donation! We appreciate your help. Please read below and VOTE as many times as you'd like! :o)



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Vote for Sam Talbot in Glad's "Steamiest Chef" Contest!

The Glad Family of Products is conducting a fun promotion with JDRF Celebrity SpokesChef- Sam Talbot. He is vying to be America's Steamiest Chef, as part of the launch of Glad's new SimplyCooking Microwave Steaming Bags, and part of his success relies on us!

Please go to www.glad.com/steamiestchef to vote. You can vote as many times as you would like (daily, hourly, or constantly!). The stakes for the JDRF are big, too - as Glad will donate $30,000 to JDRF if Chef Sam wins. Be sure to tell your friends and family about the voting - let's win!



HOT OFF THE PRESSES, Chef Dave Lieberman, who is currently in the second lead to Chef Sam in first place is catching up to Sam. Help us Keep Chef Sam in the Lead for the $30,000 donation to JDRF!!!!!

Hayleigh & the National Anthem

Just wanted to share some photos from last Monday night. Hayleigh, along with a few other kids from JDRF, got to sing the National Anthem at the AZ Diamondbacks baseball game. How cool is that? The stadium was full and there were cameras everywhere, but she was not a bit nervous. I don't think she quite gets what a big deal it is to sing the National Anthem before a major league game! We are very thankful that she got such a wonderful opportunity. JDRF is awesome and they are all about the kids!

Anyway, here are a few of them. You can see the rest in my Flickr account. Thanks for looking! :o)

*P.S. I know I haven't updated in a while and I do have a lot more to say but since school started I haven't had much time. I will update soon, though! :o)

(Click to make larger)

Cool stickers

Might as well make your infusion site look pretty! :o)

We ordered these from Groovypatches.com

How it really is

I have been thinking of doing a video for 2 months now to help with fundraising for our JDRF walk in November. I got busy and put it off until just last week. I finally talked to the event coordinator from JDRF about getting other families involved. I am hoping to get as many photos of children with Type 1 as I can to put in the video. I really want this to be perfect so people can see how life with Type 1 really is so they will want to help in finding a cure.

While searching for other videos on Type 1, I came across this one on Youtube. I had a hard time watching it because I couldn't stop the tears. This was done by the parent of a child with Type 1. I wanted to share it. I only hope that my video turns out half this well.



P.S. If anyone would like to have their child (with Type 1) included in the video I am working on to help raise money for JDRF please email me at kippy_loo at cox dot net. I would like to add as many as I can. And if anyone would like to donate to our walk, please click the white and blue button on the right side of this page with Hayleigh's picture on it. Thank you!

Passing it on to Sarah

Wow! Viv from Danieldoo just made my week. She has given me the honor of displaying the Rockin' Girl Blogger Award on my page. (Check it out! ---->)
And it wasn't just the award that touched me, it was the fact that she thought of me and said some incredibly sweet things about me. Viv, I think you rock too. I really do. And I thank you from the bottom of my heart for all your kind words.

Now I am passing it on to someone who I think really deserves it. Sarah, a single mom, not only has Type 1 herself, but her sweet little girl does as well. On top of that she is doing a wonderful job caring for her son who has Autism. If that isn't amazing, I don't know what is. She has a lot of strength and courage and I am in awe of her capabilities. So Sarah, I am passing this on to you because I honestly think you ROCK! And I'm sure I am not the only one.



Please pass this on to someone who you think deserves it as much as you do. :o)